Welcome

Amy and I are very excited to start this blog about life with lymphedema. Since we both have lymphedema, we are determined to spread awareness and education about it.

Lymphedema [lim-fa-dee-mah] is an abnormal collection of high-protein fluid beneath the skin that causes swelling. There is currently no cure for lymphedema, and while there are treatments that manage it, it’s a life-long condition that needs daily attention.

Amy and I like to joke about being the yin and yang of lymphedema. Amy was born with a genetic mutation that gave her primary lymphedema in her legs and I have secondary lymphedema in my arm as a result of breast cancer.

We have both learned how to not only live with lymphedema, but thrive with it. We hope that this blog will provide a place to share our stories and some of the tricks and tips we’ve picked up along the way.

Robin