Amy and I are very excited to start this blog about life with lymphedema. Since we both have lymphedema, we are determined to spread awareness and education about it.

Lymphedema [lim-fa-dee-mah] is an abnormal collection of high-protein fluid beneath the skin that causes swelling. There is currently no cure for lymphedema, and while there are treatments that manage it, it’s a life-long condition that needs daily attention.

Amy and I like to joke about being the yin and yang of lymphedema. Amy was born with a genetic mutation that gave her primary lymphedema in her legs and I have secondary lymphedema in my arm as a result of breast cancer.

We have both learned how to not only live with lymphedema, but thrive with it. We hope that this blog will provide a place to share our stories and some of the tricks and tips we’ve picked up along the way.


2 thoughts on “Welcome

  1. scorpiodeal says:

    Hi Amy and Robin,
    I just want to thank you two for starting this blog. I was diagnosed with Secondary Lymphedema a year ago in my left leg, due to multiple nerve surgeries on that leg. I found out while I was in the hospital recovering from Cellulitis in that leg. After finding out that I have this and that it is something that never goes away, i tried to find out everything I could about it and get treatment for it. In my search for help and answers I found out that there was not a lot of help out there. I did eventually got some therapy at USC Keck Hospital in Los Angeles and some custom braces for compression that helps.
    I hoping your blog will help me learn from others good ways to live better with lymphedema.

    Thank you,
    David Cohen

    Liked by 1 person

  2. Beth Castle says:

    I was diagnosed in 2000 with lymphedema. It took 10 years for the doctors to finally receive the diagnosis. I am a prime, my left ankle was swollen from 1990-2000, then my left leg to my knee 2000-2001. In 2001 my right leg swelled to my knee. Finally both legs were the same size. (Bad joke) I appreciate your blog. Love the ads to look for shopping for garments. Lymphnet.org and the national lymphedema website is also helpful.


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